A Quick Trip to Chicago

Thursday, Morgan and I boarded another plane to see another doctor for another medication that might help treat the symptoms of NPC in Chicago.

Friday we met be Dr. to discuss her symptoms and if she would be eligible to partake in a expanded access trial of the medication. So good news! She qualified and will be taking another med. that should be able to help with her muscle control.

Chicago Pizza!

After the appointment Morgan let me know that she was hungry so we went to grab some authentic Chicago pizza. Yum!

Why don’t they have this in Utah?

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