Uncategorized

Beat the Bear!

About a year before Morgan got her diagnosis of NPC she was diagnosed with Ataxia, a symptom of NPC, she started talking about and having dreams about wanting to beat a bear. We all laughed it off thinking that it was crazy to want to fight a bear in real life. But it wasn’t until recently that she wrote a beautiful monologue in her theater class about beating that bear where we truly understood what the bear (the disease) meant to her and it touched our hearts.

“In a world where this one little girl wants to tackle a bear a specific black bear. She is big and bold but the bear doesn’t have a single clue who he is taking on because she is not going to do it without any hesitation as a symbol of independence and self-worth.

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